Thursday, May 22, 2008

It's a new day folks -

If you notice in my previous pics, I NEVER show myself from the waist down. Although I'm still fat, I'm down 70 pounds, and I'm not hiding anymore. When I walked through those doors this morning, I started the rest of my life. This is day 1. Things are going good, even though I feel like crap most days, my MEL score (how they determine the transplant) is 14. They won't even put me on the list until I am a 15 or more, and have lost 40 more pounds. So now I am focusing only on losing weight.
The process is going to be very long and very expensive. From now until transplant time, which will probably be 6 months to a year away, we have to travel back and forth to Atlanta at least twice a month, and this first month, it will be every week. Dang gas guzzler we drive sucks! Then they informed me after the transplant my meds will cost approx $2000 a month and insurance will cover all but about $500 a month of that cost. Where am I supposed to get $500 a month for meds for the rest of my life? Off the money tree in the backyard? Lots of challenges ahead, but I'm hanging in there. Thanks for hanging with me.

5 comments:

Sandee (Comedy +) said...

I think you look beautiful. That's what I think. There has to be some help out there for those meds you need. There just has to be. Can you get on disability? Just asking. There has to be a way. Big hug and lotsa lovies. :)

Tiffany Aller said...

Oh, Sandy, it sounds like you're doing so well - you've already lost so much weight that I'm in awe! Sandee is right - check into every program you can. My dad is doing very poorly and the cost of having him in a nursing home for 5 months now is nearly enough to bankrupt my parents, but through my mom's persistence, she's found subsidy programs that will start paying for some of his services so that she doesn't have to lose everything she has to keep him in the care he so desperately needs. Keep faith, keep hope - whenever things look impossible, new opportunities become available.

Allison said...

Thanx for the visit to my TT on my Wordpress blog!

Good luck on the weight loss!!! It sucks when it's a result of or for a specific medical illness or reason (my mom lost a lot of weight as a result of...I need to because my weight is my one serious medical problem. I have nothing else [documented, because as I get older I'm starting to wonder], despite my family medical history. I know that's a blessing, it just surprises me every time tests come back fine), and man it's hard, but it's important, and you will get there! You are in my prayers and I wish you only the best of luck!

April said...

The very best of luck to you. You are beautiful no matter what!

Mercedes said...

Bless you! My cousin has been battling renal cell carcinoma for 6 years (he is almost 20) and he has some type of foundation that pays for his chemo right now-not sure if it was because he was a child when this all started or what! Good Luck! You are in my thoughts and prayers!

p.s.~I just realized we are both in Tennessee. My aunt and her family live in Signal Mountain. Her son is the one battling cancer right now. She actually just had her gall bladder removed today! I am just about an hour away from you-too cool!